It is now over a year since Stacey Mowle passed away but her memory promises to live on through a new charity making other poorly children happy
Published: 00:00, 27 April 2016
It is now over a year since Stacey Mowle passed away after a long and brave battle with neuroblastoma cancer, but her memory promises to live on through a new charity making other poorly children happy.
Stacey’s Smiles launched on Friday and promises to be the nine-year-old’s legacy, after her four-year fight.
Using the money that would have been spent on treatment for her in America, the team behind the charity will now use it to put smiles on the faces of other children fighting the same harrowing illness, with treats and wishes creating invaluable family experiences and memories.
Steve Nash, a trustee of the charity, said: “We looked at this money and asked Stacey’s parents Warren and Samantha ‘what is it you could never do when you were with Stacey?’
“They never had spare money to ‘treat’ Stacey when she was out of hospital and spending some time at home, possibly for the last time, which in the end is what happened. Everything went on funding her extensive treatment.
“It’s important for children going through this to spend time at home to recharge, to see family and friends, have fun, relax and go back into hospital happy and rejuvenated. They then respond better to the treatment.
“The support in terms of fundraising was phenomenal but with only 100 cases of this a year, the support for Warren and Sam in terms of being able to speak to others going through it was virtually non-existent.”
With that in mind Stacey’s Smiles has been set up, with a four-fold aim:
1) To raise awareness of neuroblastoma.
2) To support people going through it, with Warren and Sam talking to other parents, going to their homes or meeting for a coffee to share experiences and impart advice.
3) Granting wishes and giving treats to sick children.
4) ‘Partners not Pockets’: To develop a support network of people, businesses and community groups to enable the charity to grow.
The Stacey Mowle Appeal attracted around 10,000 followers on social media along with 16 personality patrons who all became close to the Mowle family. They include Harry Redknapp, Linda Robson, Cheryl Baker and Graham Roberts, and they are still on board under the new charity.
Stacey’s Smiles went online on Friday, and its first official outing was on Saturday when the trustees were involved with the Vaisakhi festival through Gravesend.
Treats and wishes give suffering youngsters a chance to have exactly what they want –and something a bit extra. Wishes can be anything from being a zoo keeper for a day to seeing a football match or going round Brands Hatch. But the charity plans to go above and beyond, to make the day truly special. A professional photographer would be on hand to capture the moments, luxury cars could be laid on, and extras – depending on the wish – such as a meet-and-greet with some footballers or a tour around the ground rather than just the match.
This is where the Partners not Pockets initiative is expected to come into its own, with the charity able to call in some favours with good contacts.
Steve Nash said: “We do have to budget, but if we find out there’s a group of five children who all really want to go to Disneyland Paris, that is something we would look at.”
The charity now also owns a large three-bedroom static caravan in Battle, East Sussex.
Set in a tranquil park, families will be offered the chance to have a free week away with board, food and entertainment included, to relax and enjoy some quality time.
“It was Stacey’s favourite place, the family had a lot of special memories there.”
It is anticipated most of the children Stacey’s Smiles helps will be referred via the Royal Marsden Hospital, where Stacey was treated.
The new charity’s logo features a drawing of Stacey, in one of her favourite pink bandanas. Visit www.staceyssmiles.org.uk.
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Lizzie Massey