A Kent mum who was diagnosed with cystic fibrosis when she was a young girl is due to meet the health secretary as she campaigns for what could be a live-changing drug.

CF is where a sticky mucus clogs the lungs and can also affect the digestive system and other organs.

Orkambi is widely available across the US and Europe but not in the UK.

It costs around £105,000 per person per year.

Carlie Pleasant from Sittingbourne says having it on the NHS would make a massive difference - she's been telling us her story.

Follow the KentOnline Podcast via Podbean and subscribe on iTunes and Spotify - just search for KentOnline.

In case you missed it:

• Podcast - Benny the Beluga to be remembered through plastic sculpture - 16/05/2019

• Podcast - Jeremy Kyle show cancelled by ITV - Kent reacts - 15/05/2019

• Podcast - Suicide prevention conference held on Mental Health Awareness Week - 14/05/2019

• Podcast - Concerns over potential release of serial killer - 13/05/2019

• Podcast - Golf ball sized tumour removed from baby's brain through pioneering surgery - 10/05/2019

• Podcast - Jeremy Corbyn in Medway to launch Labour's manifesto for European elections - 09/05/2019

• Podcast - Children risking their lives on railway lines in Kent - 08/05/2019

• Podcast - Man found with samurai sword during drugs raid jailed - 07/05/2019

• Podcast - Reaction to results of local elections across the county - 03/05/2019

• Podcast - More people visit self-help page to try and stop viewing indecent images of children online - 02/05/2019

• Podcast - Concerns over plans for new theme park - 01/05/2019

• Podcast - Wife calls for justice at start of inquiry into contaminated blood - 30/04/2019

• Podcast - Rape victims told to give their mobile phones to police - 29/04/2019

• Podcast - Four Debenhams stores in Kent could close - 26/04/2019

• Podcast - Parents urged to get their children vaccinated amid fears of measles outbreak - 25/04/2019

• Podcast - Teenager with learning difficulties attacked - 24/04/2019

• Podcast - Parents pay tribute to son who had rare heart condition - 23/04/2019

• Podcast - Family campaign for better support for new mums following suicide of Rebecca Kruza - 18/04/2019

• Podcast - Dean of Rochester describes Notre Dame fire as 'horrific' - 17/04/2019

• Podcast - University of Kent medieval expert hopes Notre Dame in Paris will be rebuilt after devastating fire - 16/04/2019

• Podcast - Landlord criticises new rules aimed a protecting tenants - 15/04/2019

• Podcast - Adoptive mum of boy who needed his legs amputated slams findings of serious case review - 12/04/2019

• Podcast - Fresh hope for Kent girl with epilepsy - 11/04/2019

• Podcast - Children from Demelza Hospice feature in exhibition by world famous photographer - 10/04/2019

• Podcast - Overhaul to divorce law to end 'blame game' between partners - 09/04/2019

• Podcast - Devastated mum has daughter's cannabis medication confiscated - 08/04/2019

• Podcast - Mum turns fashion designer for autistic children - 05/04/2019

• Podcast - Autistic children hit by funding cuts - 04/04/2019
• Podcast - Committee set up to tackle rise in knife crime - 03/04/2019
• Podcast - Figures reveal the scale of dog fighting in Kent - 02/04/2019
• Podcast - Bereaved parents bid to help others - 01/04/2019
• Podcast - Mum turns entrepreneur after loss of twins - 29/03/2019
• Podcast - Mum campaigns for live saving cystic fibrosis drug - 28/03/2019
• Podcast - 24/7 helipad could save more lives - 27/03/2019
• Podcast - Mum pleads with Snap chat to reveal identify of daughter's troll - 26/03/2019
• Podcast - Kent's Brexit test and why ditching the car could help your children - 25/03/2019
• Podcast - Education funding warning, how will your children be affected? 21/03/2019
• Podcast - Parents urged not to shout negative comments at children's football matches - 20/03/2019
• Podcast - Mum's battle to get cannabis oil treatment for daughter - 19/03/2019
• Podcast - Reality stars, fame and pressure - 18/03/2019