More on KentOnline
The mum of a Kent teenager with a rare disease says the decision to make a potentially life-extending drug available on the NHS is a dream come true.
Mel Bolt from Minister has been campaigning for Spinraza to be made accessible to help her daughter Abbie, who has spinal muscular atrophy.
The 15-year-old has battled with the incurable muscle-weakening condition since she was just two and is wheel-chair bound.
Follow the KentOnline Podcast via Podbean and subscribe on iTunes and Spotify - just search for KentOnline.
In case you missed it: