Mum Zoe Low to get specialist help for daughter Lucie Low after Rehman Chishti raises plight in Commons
Published: 10:00, 02 March 2015
A mum has won her fight to get specialist treatment for her teenage daughter - after her plight was raised in the House of Commons.
Lucie Low, 13, has been in hospital for eight weeks after being diagnosed with a rare digestive disorder, which has left her doubled up in agony. Her mum says it is like she is in labour.
The Chatham Grammar School pupil has been seen by different consultants but her condition is so rare, bosses at Medway Maritime have been struggling to find a specialist to treat her.
As a last resort, her desperate mum Zoe set up a Facebook page and posted a video online, showing Lucie crying in pain.
She also contacted her MP, Rehman Chishti, who was able to arrange a meeting with hospital chief executive Phil Barnes on Wednesday.
And on Thursday, Mr Chishti spoke about Lucie in parliament and was told by the leader of the House, William Hague, he would bring it to the attention of his colleagues in the Department of Health.
Later that day, Ms Low was told King’s College Hospital in London had agreed to admit Lucie and carry out further tests. She is now waiting for Lucie to be transferred from Medway.
She said: “It is a positive step but it is still frustrating because we are still waiting. Lucie is in just as much pain.”
Lucie started suffering stomach problems in August last year. Since then her weight has plummeted, dropping 14kg in just three months. Lucie had several trips to the hospital but was told it constipation.
She was eventually admitted to Great Ormond Street for tests and diagnosed with superior mesenteric arterial syndrome, caused when part of the small intestine is compressed between two arteries, so it becomes blocked.
Lucie was transferred to Medway 10 days later but Ms Low said doctors there could only provide pain relief.
Ms Low, 36, from Rainham, said: “Lucie is in pain 24/7. The only way to describe it is like she is in labour, she is doubled over.
"I have had to see my beautiful 13-year-old daughter go from being a normal teenage girl to not being able to get out of bed.”
Lucie’s friends set up a donation site to raise money for her to have private treatment. In just a few days it raised more than £4,000.
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