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A mum says it is a constant worry that the department of the hospital which treats her daughter could close.
Cat Halliday’s daughter Tiffany is under the care of the Royal Brompton Hospital in London for serious heart conditions.
Last summer, we reported how she is campaigning against a ruling that the unit will stop performing children’s heart surgery.
Although the closure has been put off for now, it’s something which is always on Miss Halliday’s mind.
The 25-year-old said: “It’s quite worrying because I wouldn’t trust any other hospital with Tiffany.
“The Royal Brompton is the best one. If it comes to it, I will just have to put up with it, but I would rather it didn’t come to that.”
Tiffany, who is 18 months old, has three holes in her heart and suffers from feeding and weight problems, poor circulation and a lowered immune system and has a likelihood of being autistic.
Her condition, known as 22q11.1 deletion syndrome, means she lacks chromosome 22 and it affects one in every 4,000 births.
She also has an enlarged heart, pulmonary stenosis and a ventricular ring.
Miss Halliday, of Wood Street, Sheerness, has recently learnt her daughter’s condition is worse than first thought and she will be having her first heart surgery within the next few months.
It is called a balloon valvuloplasty and is to straighten her pulmonary artery.
Major surgery will follow that which will be to close the holes in her heart.
Although Miss Halliday is obviously nervous about the surgery, she said the care the hospital give puts her mind at ease.
She said: “When they said major heart surgery, it’s not what you want to hear.
“But at the same time with the minor procedures there’s a risk of chest infections so [having it] outweighed the cons. The hospital makes all the difference.”
Miss Halliday is still supporting the Save The Royal Brompton campaign and will be doing a sky dive in April to raise money.