A Sittingbourne mum, whose young child was given a heartbreaking medical diagnosis, has spoken about the devastating impact it has had on her family.

Kirstii Williams was told her son Finley is suffering from an incredibly severe form of muscular dystrophy called Duchenne.

The disease, which affects just one in around 3,600 boys, means the four-year-old will most likely not live much beyond the age of 25.

Kirstii, who lives with Finley and her baby son Frankie on Chalkwell Road, said: “I had been worried about Finley’s physical development since he was about two – he was not running, jumping or climbing and was constantly falling over.

“Professionals kept telling me he was fine and would do things in his own time.

“Then, in September 2014, Finley started reception at Westlands Primary and he would say to me: ‘Mum, I’m always ‘it’ at school because I can’t run fast enough’.”

Following a series of tests at the Orchards Children’s Centre in Sittingbourne, Kirstii and Finley were given the life-changing news.

But despite the devastating prognosis, the 23-year-old has started raising awareness and support for the Action Duchenne – a charity dedicated to finding a cure to the illness.

On Sunday, August 2, she is organising a special fun day at the Woodcoombe Club in Church Road, Sittingbourne, in aid of organisation and also to fund equipment for Finley.

She said: “There’s no cure unfortunately; it’s a progressive illness so Finley’s strength will get less and all his muscles will be affected, including his heart and lungs.

“Action Duchenne is desperately searching for some sort of cure for boys with the condition so the best thing I can do now is to raise funds and awareness as much as possible.

“I’d also like to fund equipment and things Finley is going to need as the years go on.”

The day of raffles, stalls, games and food will run from 11am to 5pm and everyone is welcome.