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An 11-year-old girl with an amputated leg, once told by doctors she may never walk or talk, is to join a 10-mile hike to raise money for the hospitals which saved her life.
Angel Farley, of Iwade, was born without a right hip socket or right femur, has a curved and shortened left femur, and is missing the bottom part of her spine and has club-foot.
Among other medical problems, she also had a hole in the heart, although this has now been fixed, and has bladder and bowel problems.
Her two conditions, Proximal Semoral Focal Deficiency (PFSD) and sacral agenesis, affect only one in 250,000 and one in 300,000 people respectively and are so rare that mum Holly says doctors treating her were dealing with it for the first time.
Angel's parents were told she would not survive, but she has surprised medical experts and powered through.
Two days after her 10th birthday last year, she had a lower leg amputation with the intention of it improving her life but things went from bad to worse.
Although the operation went well, Angel was struck down with a serious infection in her stump, a severe drug reaction, seizures and sepsis, and had to rely on life support, spending seven weeks at Great Ormond Street Hospital.
Now recovered from the ordeal, she is to take part in a sponsored walk from her home in Iwade to Medway Maritime Hospital, where the Disablement Services Centre made her prosthetic, to raise money for the hospitals.
“Things got so bad after her amputation and there were points when we weren’t sure if she was going to pull through,” said Holly.
“She had a hard time mentally and had counselling because she wasn’t her usual self.
"In time she got over it and she says now that she’s happy, she’s doing more and looking at life in a positive way. We’re extremely proud of her.
"She’s doing so much better and is able to do so much that she was told she couldn’t do.
“Every single penny, will be split between the disablement centre at Medway and Great Ormond Street Hospital to not only show them our gratitude but also the money may help another child.”
The brave little girl with a big heart was featured in the Sittingbourne News Extra in 2017 for her annual tradition of sending hundreds of Christmas Cards to people with autism to brighten up their holidays and last year appeared on a special Great Ormond Street Hospital episode of The Last Leg.